Volunteers are free to withdraw from the study at any time. If you are a participant please talk to any member of the research team if you wish to withdraw. The research team may ask you why you are leaving the study. Explaining why will help us to design future studies. However, you do not have to give any reasons for your withdrawal if you do not want to.

If you have a concern about any aspect of this study, you should ask to speak to the researchers who will do their best to answer your questions (Professor Kooner and Dr John Chambers can both be contacted on 020 8967 5000). If you remain unhappy and wish to complain formally, you can do this through the NHS Complaints Procedure. Details can be obtained from the hospital.